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Chaney Roko, center, holds her adopted daughter, Kiera, 4, while she has a series of muscle spasms in her back. Kiera has Arthrogryposis Multiplex Congenita, a rare neuromuscular disease that bends the body's joints at birth. She is not able to speak, walk, chew food, hear, or see.
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Chaney Roko, 34, is a single mother of two adopted children. Mary, 9, and her sister Kiera, 4, both have Arthrogryposis Multiplex Congenita, a rare neuromuscular disease that bends the body's joints at birth. The disease prevents the girls from speaking, walking, breathing and eating on their own.
The only way to fix this is through serial casting, which forces the disrupted bone structure back into a normal state. Growing up, Chaney's family adopted a young girl who was also diagnosed with AMC. To take care of her kids, Chaney had to quit her job in order to be a full time mother. She wants to move out of her two-story home into a ranch in order to accommodate to her kid's needs, however she faces financial issues that prevent that from occurring anytime soon.
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Chaney Roko pushes her daughter, Kiera up a ramp leading to their backdoor entrance. Because Kiera cannot walk, she needs to be pushed in a wheelchair wherever she goes.
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Mary Roko, center, is prepared for scoliosis surgery inside Strong Memorial Hospital in Rochester, N.Y. This major surgery will correct Mary's spine from an 80 degree curve down to a 40 degree curve, helping her gradually be able to walk on her own without supervision.
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Chaney waits inside the Pediatric Surgical waiting room after her daughter, Mary, endured a seven hour long scoliosis surgery, inside the Strong Memorial Hospital on Sept. 14, 2015 in Rochester, N.Y.
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Chaney kisses her daughter Kiera on the cheek after completing a physical therapy stage at C.P. Aquatics in Rochester, N.Y.
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Chaney Roko, left, watches over her adopted daughter, Kiera, 4, as she takes a nap on the family room floor. Letting the children nap during the day allows Chaney to take advantage of free time to watch television without tending to her daughters.
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Karen Roko, left, holds her granddaughter, Kiera as Chaney holds her daughter Mary, right, inside the living room after a day of therapy.
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Mary Roko, 9, left, lays on the living room floor next to her sister, Keira, 4, right, inside the Roko family home in East Rochester, N.Y.
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A view of the medical supplies used to feed Mary and Kiera Roko. Each day, Chaney cleans the previously used tubes with alcohol to keep them sanitary. Because they are unable to consume food on their own, they must be fed water based food through a tube.
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Chaney, left, and Physical Therapist Karen Terp, right, put on Kiera's back brace before the start of a physical therapy session inside C.P. Aquatics, on August 31, 2016 in Rochester, N.Y. Each week, Chaney takes Kiera to therapy to learn how to walk on her own. At birth, doctors said that Kiera would never be able to walk on her own.
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Chaney holds her daughter, Mary's hand inside the Roko's living room.
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Chaney, left, laughs with her daughter, Mary, while trying on halloween costumes inside their living room.
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Chaney Roko looks over her sedated adopted daughter, Mary Roko, 9, inside the Intensive Care Unit of the Strong Memorial Hospital on Monday, Sept. 14, 2015 in Rochester, N.Y. Mary, who suffers from scoliosis was given morphine after having back surgery that would correct her spine.
